Be warned - these pages are each rather long and can take some time to download and read.
Please send any e-mail you would like to appear to UKBCA@somewhere.org.uk. Unless you are clearly writing on behalf of an organisation, your e-mail address will not appear on the site. Any e-mail from other visitors responding to your message with information will be forwarded to you.
*****************************************************************
> >Dear Friends,
> >
> >Hi!
> >I am writing to ask if you will kindly add the following web sites as
> >links on your site.
> >Thank you very much!
> >
> >Respectfully,
> >Kelly Munsell
> >Breast Cancer Survivor at age 27.
> >
> >Mothers Supporting Daughters with Breast Cancer
> >http://www.azstarnet.com/~pud/msdbc/
> >Provides free services to breast cancer patients anywhere in the world!
> >
> >
> >Breast Cancer Awareness: Two Sisters' Stories
> >http://www.azstarnet.com/~pud/
> >Twin sisters, 29, share their courageous battle against breast cancer.
> >
> >
> >Breast Cancer Awareness Items
> >http://www.azstarnet.com/~pud/msdbc/items.html
> >Beautiful items featuring pink ribbons. Reasonably priced and shipped
> >promptly. All proceeds benefit non-profit breast cancer organization.
Nina Pope wrote:
>
> Dear Kelly -
> Thanks for your message to the UK Breast Cancer Awareness site, which I
> am now maintaining. I'm sorry if it has taken me a while to reply to you.
> We try to keep a small and very focussed set of links to UK Breast Cancer
> related sites, or very relevant ones from further afield (otherwise I
> think women here find it depressing to just see lots of resources none of
> which are available in the UK). I will try and look at these sites when I
> get some time but
> but what I can do is add your message to the next feedback page that I
> put together - that way visitors to the site can see it in the context of
> your message.
>
> I hope this is OK with you,
>
> best wishes
>
> Nina Pope
That's SUPER! Thanks so much!
Love,
Kelly :-D
*****************************************************************
>Dear Ms Pope, I am doing an assignment on breast cancer, looking in
>particular at the period between diagnosis and treatment, and the
>options and support that exist in making the decision for surgery. I
> am particularly interested in the support groups that women can go
>to for counselling after getting their diagnosis. I f you could
>suggest some websites or postal addresses I would be most grateful.
>
>Thankyou
> Alison Whatmore
>3rd year BSc (Hons) Health Studies
>University College Worcester
Dear Alison,
Thanks for your message to the UK Breast Cancer Awareness site, I'm sorry
but I don't have much information about support groups but I am
forwarding your message to a friend Lynn Duffus who may be able to help
you.
best wishes
Nina Pope
Subject: Re: support groups
Sent: 1/11/98 6:07 pm
From: lyn duffus,
Dear Alison Whatmore,
Nina Pope has forwarded your query about breast cancer support groups to
me. So that you have some idea of where I'm coming from (ie my biases!) I
have helped to run a support group for six years now, and have just stepped
down from actively helping with the group, to give more time to asisting
with a project to start an information centre.
Provision of support groups in the UK is very fragmented. Whether or not a
woman is referred to one immediately after diagnosis may depend on whether
the consultant or breast care nurse at the hospital she attends have a
positive view of the value of support groups, and in my experience often
select which patients they feel it would be appropriate to recommend this
form of support to. In addition, they are sometimes genuinely unaware of
local support groups. In my experience, if the hospital breast nurse runs a
support group, the patients will be made aware of it, but if there is no
hospital-run group, patients are very much less likely to hear of support
groups. Hospitals also vary in the quality of the information they give
patients about organisations that exist to help cancer patients (and which
provide another route by which patients can learn what support groups
exist). It has also been my experience that in the time between diagnosis
and initial surgery patients often are too confused and also do not have
the time to search very actively for support groups.
Breast Cancer Care, who are the national BC charity, do not offer support
groups as such, but do offer a helpline and one-on-one meetings with
volunteers who are matched for treatment and lifestyle, if possible, with
the caller. Their website only recently started, so I haven't looked at it
yet and my understanding is that all of their literature will also be available
via their website, which would give patients information about treatment
options.
Both Cancerlink and Bacup , have directories of support groups, both
general and those specifically for breast cancer. Both directories can only
include information provided by the groups, so not all groups may be
included, or their details can become inaccurate. The Bacup directory can
be accessed through their website and is useful in that patients can access
it directly instead of phoning an organisation who, unless they have local
knowledge, may not realise how accessible or otherwise a group that sounds
local may be. For example, directories tend to be set up by county; an
enquirer on the phone may be told of a group at the other side of the
county, when there's a nearer one which is in a different county. Bacup
literature can also be downloaded from their site - so that patients could
find further information here about surgery and reconstruction options. As
far as I'm aware, Cancerlink doesn't yet have a website.
I assume you have looked at the list of resources on the UK Awareness site,
since you reached Nina Pope via that site? Another UK site you might find
useful for its list of resources is the Channel 4 site, on the "off-screen"
section
One support and information option which is not open to many in this
country yet is the various email support groups; there are several
specifically for breast cancer, and others for general cancers, for carers,
for children of parents with cancer, and so on. For obvious reasons,
information and discussion on these lists tends to be based round American
(and to a lesser extent Canadian) treatment options, but there are some UK
subscribers.
Incidentally, you specifically mention "counselling"; most support groups
do not offer professional counselling, and are careful not to claim this,
but they do offer emotional support and often information as to where
professional counselling would be available if required.
If you need any further help, feel free to write me,
Regards,
Lyn Duffus
*****************************************************************
>hi
>
>I am writing form a publishing company called metropolitan scotland in
>edinburgh, we publish a website called cleome.com, an online magazine
>for women, and have just commissioned an article on Breast Cancer by a
>Scottish journalist. The reason for my email is to request permission to
>feature some of the information on your site and possible use one of
>your graphics to link back to your site.
>
>the article is on http://www.cleome.com/health/heal3.html
>
>regards
>
>marc walker
Dear Marc - thanks for your message to the UK Breast Cancer Awareness
Site, yes it oul be fine for you to link to us, and use any of the
graphics. I'll have a look at the article next time I'm on line.
best wishes
Nina Pope
*****************************************************************
> Hi, my name is Lina and I am a college student in Vancouver, BC. I am
>currently doing a project in regarding major Conferences. I have a great
>deal of interest in knowing more about the World Conference on Breast
>Cancer. If you have the time, can you please tell me how I can see an
>overview of your Breast Cancer Conference package; highlighting details
>about the outline of this particular conference. How to register,
>background of guest speakers, activities, accommodation and food &
>beverage, number of attendees, length of conference, action plan, etc.
> I would be extremely thankful for your time and kindness! If you have
>any questions, you can e-mail me at lina_t@hotmail.com. Hopefully, you
>can respond to me as soon as possible. Thank you once again.
Dear Lina - you've emailed the UK Breast Cancer Awareness site, we only
mention the conference oon our diary page of forth coming events, but
there is a link to the conference site:
The National Breast Cancer Coalition (USA) will hold the Second World
Conference on Breast Cancer Advocacy, 11 - 14 March 1999, in Brussels.
For more information on, visit the
NBCC's website
best wishes
Nina Pope
*****************************************************************
>Dear Nina Pope
>I am interested to see your pages and I wonder if your organisation would
>like to list our web site on its pages. We are an organic food suppliers
>based in London. We supply homes, shops and restaurants with fresh and
>prepared certified organic produce. Organic food is free of pesticide and
>other residues which are known to be toxic. Recent research also suggests
>it may be carcinogenic. In addition the cumulative and 'cocktail' effects
>of pestcides are thought to be much greater than one compound alone. I
>expect you are already aware of these points.
>Our web address is http://www.farmaround.co.uk
>and we would like to hear from you if you are interested in setting up a
>link or would like further information.
>
>Best Regards
>Sarah Dixon
*****************************************************************
>Nina:
>I'd like to send you a brand new book called The Truth About Breast Cancer: A
>Seven Step Prevention Plan, (Parissound, 1999), by Joseph Keon, Ph.D.
>Please send me a mailing address if you would like a comp copy.
>Joe
Joe - I'm sorry it has taken me a while to respond to your message to
the UK Breast Cancer awareness site, you could send me a copy of the book
but I have to be honest and say that I don't have time to review it at
present for the site - is this hat you had in mind? If so, and you do
know someone ho ould like to write a review do let me know.
best wishes,
Nina Pope
*****************************************************************
Subject: John Hopkins Breast Center
Sent: 28/12/98 3:31 pm
From: Nina Pope, nina@somewhere.org.uk
To: Lillie
>I'm the director of education and outreach at the Johns Hopkins Breast Center
>in the USA. We'd like to know if you would consider linking our site with
>yours. We are VERY pro educating women about this disease so that they can
>directly participate int he treatment planning. We have developed our own
>breast cancer patient bill of rights (which was written by a team of breast
>cancer survivor volunteers who work with me) and also have a document called,
>"Breast Cancer- making the right choices for you." --- that document received
>a national award this fall as also did our website!
>The address is: http://www.med.jhu.edu/breastcenter
>Thanks in advancer for considering this request!! We are planning an
>international breast cancer conference in fall 1999 and will be having a
>physician from England speaking there as a plenary speaker about our national
>quality standards for breast cancer diagnosis and treatment.
>Thanks, Lillie Shockney, RN., BS., MAS 6 yr breast cancer survivor.
Dear Lillie - thanks for your message to the UK Breast Cancer Awareness
Site, I'm sorry if it has taken me a while to respond to your enquiry.
Regarding a link to your site - I'm afraid we keep our links page very
small and specific to the UK (it can be very depressing for women here to
just see endless lists of places they could do if they lived in the
States!). However, I will put your message onto the new feedback page for
January so visitors can see the link. Also if you'd like to send more
details of the conference nearer to the time I will list it on the diary
page. On another note entirely it was odd for me to see a message from
John Hopkins as this is where Marie (who I started the site with
http://www.easynet.co.uk/aware/info/about.htm) went to university, she
later chose to live in the UK but it meant that the name was very
familiar to me.
Best wishes
Nina Pope
*****************************************************************
>Dear Nina Pope,
>
>I am researching a revised edition of the BMA Complete Family Health
>Encyclopedia for Dorling Kindersley Publishing. The stats that you quote on
>
>your breast cancer awareness web page are just what we need. Could you tell
>
>me the source of your figures please?
>
>Many thanks,
>Andrew Pine
Dear Andrew - many of those stats came from Breast Cancer Care - who I've
copied this to - there is also a link to them from our site.
Best Wishes
Nina Pope
*****************************************************************
Dear Rachel (& Helen), I'm writing regarding the message (below) you sent
to the UK Breast Cancer Awareness site. Unfortunately it went to our old
address which I only check very occasionally so I'm sorry it has taken me
so long to reply - you'll see from above that I'm forwarding your message
directly to WEN (they also have an email address specifically for the
Putting Breast Cancer on the Map project artemis@gn.apc.org)
wenuk@gn.apc.org is their general address.
I'm sure WEN will be in touch directly but I also thought I might add the
first paragraph of your message to our feedback page for other visitors
to see your web address if this would be OK?
best wishes
Nina Pope
____________________________________________________________________
I am contacting you on behalf of 'Powerful Information', whom I am
helping with one of their environmental briefings 'Sources of
Environmental Inforamtion'. Powerful Information is an independent
non-profit environmental information service that works exclusively
on information and education projects in some of the less affluent
parts of the world. Dr Mike Flood is the executive director and Susan
Guiver is the Programmmes Manager. They provide training and advice,
and also books, manuals and briefings. Their briefings provide an
overview of important environmental issues; they also identify
relevant publications and include useful contact addresses. These
briefings are produced in-house, which enables the information in
them to be kept up-to-date, and resources permitting, are distributed
free in the target countries overseas. The URL for Powerful
Information is http://www.gn.apc.org/powerful-information and the
e-mail is powerinfo@gn.apc.org
The aim of 'sources of Environmental Information' is to identify key
organisations concerned with the production and dissemination of
environmental information.
*****************************************************************
Subject: www.breastfit.com
Sent: 28/12/98 3:31 pm
From: Nina Pope, UKBCA@somewhere.org.uk
>Hello,
>
>We would like to link to your site in exchange for a link to ours.
>
>We have created The Better Than Before Fitness Video for breast cancer =
>survivors to help them regain the full range of motion to those areas =
>affected by surgery.
>It is avaiable in PAL !
>
>Jon
>
>www.breastfit.com
Dear Jon, thanks for your message to the UK Breast Cancer Awareness Site,
I'm sorry if it has taken me a while to respond to your enquiry.
Regarding a link to your site - I'm afraid we keep our links page very
small and mainly for UK specific organisations. However, I will put your
message onto the new feedback page for January so visitors can see the
link.
Best wishes
Nina Pope
*****************************************************************
Subject: Re: Womens Health Magazine
Sent: 28/12/98 3:31 pm
From: Nina Pope, UKBCA@somewhere.org.uk
To: Fiona Stedwell
>My name is Fiona Stedwell and we hold a site and manage it and are
>having great succes with it.
>
>I would like to place information on the site about breast cancer as we
>feel that it is very important.
>
>Would some one please be kind enough to call or send an e-mail.
>01473 255 024
>
>Regards,
>
>Fiona Stedwell
>Manager
Hi Fiona thanks for your message - I am the contact for the UK Breast
Cancer Awareness Site, if you'd like to send me further messages -
although I must warn you I maintain it voluntarily and response time can
be a might slow! You might also look at the following sites:
Breast Cancer Care
UK Coalition
* both came on line in October.
Bacup,
Breakthrough,
Cancerkin,
Europadonna,
Marie Curie Cancer
Care
Women's
Nationwide Cancer Control Campaign
The Bacup site is
particularly comprehensive and has a useful list of links to
other UK sites.
best wishes
Nina Pope
*****************************************************************
Subject: Micrometastasis Diagnosed in In Situ Breast Cancer!
Sent: 28/12/98 3:31 pm
From: Nina Pope, UKBCA@somewhere.org.uk
To: Carol Thompson
>Thanks to the new keratin (histochemical) staining, I was the first
>woman here to be diagnosed with met to the lymph. . . after a long
>struggle to convince doctors that a phase III comedo 3.2 cm and larger
>(2 sites, right breast) could metastasize. I had lost both of my
>younger siblings to cancer before the age of 30, and I did not take my
>pathology findings lightly regardless of the "in situ" diagnosis.
>
>It took a second surgeon, who was aware of the new pathology techniques,
>and the National Institutes of Health pathology division to concur with
>the met. but we found it!
>
>Thus, I've created a website at http://web2.airmail.net/lorac1/
>
>Right now, I'm recovering from a most aggressive chemotherapy
>(adriamycin and cytoxin), 1-1/2 mastectomies with node excision (after a
>lympectomy w/o node exploration), and I've been off work and ill since
>May, 1998...but improving now.
>
>My case was presented in Central Texas, U.S., in August, and micromet.
>will be covered at the San Diego, Calif. conference. Dr. Kent Osborne
>at the Cancer Therapy Research Center in San Antonio, CA, and my
>oncolgoist, Jerry D. Fain, M.D. as well as the surgeon, Jane Nelson,
>M.D. (the latter two in Austin, TX), are well acquainted with micromet.
>
>Women who have had lumpectomies and partial mastectomies, with node
>exploration, could have those pathology materials re-examined using the
>keratin staining...to determine met. to the lymph. If not, be very
>cautious...
>
>It is important, too, to remember that reconstructed breasts do not
>respond favorably to mammography detection. Please help spread this
>word.
>
>Thank you, and my heart went out to you, in reading of your loss.
>
>Sincere regards,
>
>Yours faithfully,
>
>Carol
Dear Carol - thanks for your message and for your mention of Marie - I
will include it on our next feedback page.
Best wishes
Nina Pope
*****************************************************************
Subject: NABCO newsletter
Sent: 28/12/98 3:31 pm
From: Nina Pope, UKBCA@somewhere.org.uk
To: aliza
Dear Aliza - funny to get a message from you after such a long time - I
don't know if you remember but we had some contact via email many years
ago in the early days of women on the web! Anyway your message to the UK
Breast Cancer Awareness site - unfortunately came to our old address
which I've only just checked so I'm sorry it has taken me so long to get
back to you. The column you mention sounds interesting but I'm afraid I
don't think I can show it on our site - partly because we try to be very
UK specific but also partly because I run it voluntarily and try to keep
maintanence to an absolute minimum. However I can put the message on our
feedback page and other sites may take up the offer. Also the UK BC
Coalition have recently got their own site and may be interested so I
have also copied the message to Nancy Roberts who's keen on the web side
of that organisation.
Best wishes
Nina Pope
Hello,
I'm working with NABCO (the National Alliance of Breast Cancer
Organizations) to syndicate their upcoming monthly AskNABCO
column addressing breast cancer issues.
The concept is that during the last week of each month we will email
you the text for the next month's column written by
Amy Langer, Executive Director of NABCO and breast cancer
survivor. We can provide the following to you and you can
lay out the column to fit the style of your site:
1. Text of AskNabco - a question posed by actual women and
the professional and informative response from Amy Langer
2. Amy Langer's biography and photograph (optional to use)
3. An AskNABCO logo (although you can design something that
is in keeping with your site's look)
We ask that the AskNABCO logo be displayed along with a hyperlink
to the NABCO homepage at http://www.nabco.org (which is
undergoing redesign - a preview is at http://www.nabco.org:8000).
Also, the text of the column cannot be altered in any way.
Below is an example of the first column. Please let me know if
you are interested in syndicating this monthly expert column
about breast cancer at no charge.
Aliza Sherman
Cybergrrl, Inc.
212-785-1276
*****************************************************************
To whom it may concern...
I found a small lump in my breast, in June 1997. As a fairly
well-known face and voice (the one with the deep voice and Lancashire
accent) I had no hesitation in 'going public' with my breast cancer.
Various national newspapers wrote about my situation, I talked about it
on Richard & Judy and the show I was presenting at the time, Espresso on
Channel 5. I know only too well how powerful the media can be. I also
know, on a personal level how important it is to talk, in times of
crisis.
After a year of treatment (Chemotherapy, Radiotherapy, Tamoxifen,
Prozac, Steroids etc) during which time I worked on 3 different
programmes, my husband Tony & I decided to take the summer off. Seven
weeks ago, just as I was beginning to feel like myself and look forward,
I discovered a secondary under my left arm, in the lymph nodes.
To cut a very detailed and scary story short, I am now, as far as I
know, cancer free. The tumour and my lumph nodes were removed, and
though the tumour was "riddled" with cancer, miraculously, not a single
cancer cell was found in any of my other lymph nodes. I feel like I
have been handed a second chance at life, on a plate, and want to do
everything I can, in my position as a journalist and broadcaster to help
others who haven't been as lucky as me.
AND THIS IS WHERE I NEED YOUR HELP.
I have decided to write the book that wasn't available to me when I was
diagnosed. Aslo, I will soon be writing a series of articles in THE
SUN, in the women's health pages and would like some guidance as to what
you think are the most important issues about Breast Cancer.
Please let me know your stories (which I will obviously treat in the
utmost confidence unless you're happy to be identified).
These are some of the issues I feel need covering:
* The impact on being diagnosed and the effect on others
* The massive culture of fear and silence that still surrounds Breast
cancer
* The clinical approach of doctors
* The inconsistency of treatment throughout the country
* The male reaction
* The benefits of alternative and complementary therapies
* The power of the mind to heal the body.
The list is endless but If you feel you can help with my research &
writing, please contact me on my *E-Mail
(*I can forward this to those interested - Nina)
Whilst I was waiting for my second operation, I was able to persuade
Carlton Television to back a documentary about my recent illness. We
have filmed 22 hours of intimate footage so that people can see exactly
what happens, both physically and psychologically when a woman gets a
tumour and how it affected my husband, 6 year old daughter, family and
friends. I even saw my tumour in the Path Lab and watched it being
disected.
Hopefully this will appear in the next few months as a one hour
documentary on the ITV Network.
If I can do anything to further the cause, please don't hesitate to
contact me. I look forward to hearing from you.
Best wishes
PATTIE COLDWELL
Dear Pattie - many thanks for your message which you sent back in
November (below) to the UK Breast Cancer Awareness site - unfortunately
it came to our old address which I've only just checked so I'm sorry it
has taken me so long to get back to you. I hope that your treatment is
continuing to go well since you wrote.
I don't know who else you contacted via email - but I thought I might
suggest Nancy Roberts of the UK Breast Cancer Coalition and Breast Cancer
Care (see cc's) - both organisations campaign for the rights of women who
are affected by Breast Cancer and may be interested in working with you
on your book (you may well have already been in touch with them?). As far
as the site is concerned would you like me to put your message onto our
feedback page? That way other women could read about what you are doing
and may want to send you their stories - let me know if you feel this
would be appropriate.
Best wishes
Nina Pope
*****************************************************************
>Hi,
>
>Allow me to introduce myself. I am Stephanie Gover and I work in the
>Marketing Department of McGraw-Hill Publishing Company.
>
>We have a new book being published in December called: Breast Cancer -
>Breast Cancer -
>Can you Prevent it? by Dr. James Lawson and his daughter Imelia Lawson.
>
>I would be delighted if you would consider this book for review and
>email me back with your ideas. We are currently doing a lot of promotion
>work for this book and I see your website as an exciting opportunity to
>promote the book.
>
>If you would like a copy or indeed have any questions, please do not
>hesitate to contact me by email or on 01628 502584 or fax on 01628
>502167. I am very excited about this book and would appreciate a call.
>
>YOurs sincerely
>
>Stephanie Gover
>Marketing Department
>McGraw-Hill Publishing company
>Shoppenhangers Road
>Maidenhead
>Berks SL6 2QL
Dear Stephanie - thanks for your message to the UK Breast Cancer
Awareness Site, I'm sorry if it has taken me a while to respond to your
enquiry. We do have a book review section but I am currently unable to
take on writing reviews myself - however perhaps you would like to ask
someone else to review the book for the site? I will add your message to
the new feedback page so visitors can read about your publication anyway.
best wishes
Nina Pope
*****************************************************************
>I really found your website on Breast Cancer very helpful.
>Great work. I'm writing to suggest a link to my website, the
>Breast Cancer Book Store, aimed at helping people with BC find the
>books and information they need to cope and regain health. Please
>consider adding a link to us. If you do add a link, please send me
>your URL and Site Title and I will add your site to our links page.Thanks!
>
>Peter Waite, Webmaster
>Breast Cancer Book Store
>http://members.aol.com/healthbook/breastcancer/
>
>To add a banner to the Breast Cancer Book Store, go to:
>http://members.aol.com/healthbook/banner.htm
>
>Also consider adding a link to the Breast Cancer Internet Resource Center at:
>http://members.aol.com/healwell/breast.htm
Dear Peter, thanks for your message to the UK Breast Cancer Awareness
Site, I'm sorry if it has taken me a while to respond to your enquiry.
Regarding a link to your site - I'm afraid we keep our links page very
small and normally specific to the UK. However, I will put your message
onto the new feedback page for January so visitors can see the link also
we have a 'well read' section where it might be appropriate to place a
link - so I will have a look at your site later today.
Best wishes
Nina Pope
*****************************************************************
>Breast Cancer On Mediconsult.com Pro/Con
>
>We are a large patient-focused medical web site with peer-reviewed =
>content I am writing to ask you to consider linking Mediconsult.com to =
>your site.
>
>Mediconsult.com welcomes open discussion on breast cancer issues in our =
>new
>community feature, PRO & CON. You can express yourself and share
>your life experiences while helping others in the breast cancer =
>community.
>PRO & CON on Mediconsult.com - real discussions on important medical =
>issues.
>To become part of this exciting new discussion forum on breast cancer go =
>to:
>http://www.mediconsult.com/breast/procon/
>
>We would appreciate any suggestions or comments you may have. Please =
>include the URL for your site.
>
>Thank You
>
>Linda Beatty
>Promotions Assistant
>Mediconsult.com
>phone: 506 383-8988
>email: lbeatty@mediconsult.com
>The Medical Web Destination Patients Use Most
>Click here to Visit our Sites:
>URL: http://www.mediconsult.com/
>URL: http://www.mediconsultinc.com/
Dear Linda, thanks for your message to the UK Breast Cancer Awareness
Site, I'm sorry if it has taken me a while to respond to your enquiry.
Regarding a link to your site - I'm afraid we keep our links page very
small and specific to the UK (it can be very depressing for women here to
just see endless lists of places they could go if they lived in the
States!). However, I will put your message onto the new feedback page for
January so visitors can see the link.
Nina Pope
*****************************************************************
About these pages: Contact Nina Pope - UKBCA@somewhere.org.uk