feedback
This page contains Feedback we've received from January 1999 to June 1999. Earlier Feedback pages cover the periods:

Be warned - these pages are each rather long and can take some time to download and read.

Please send any e-mail you would like to appear to UKBCA@somewhere.org.uk. Unless you are clearly writing on behalf of an organisation, your e-mail address will not appear on the site. Any e-mail from other visitors responding to your message with information will be forwarded to you.

Dear Belinda, thanks for your lovely message, I'm really sorry it
has taken me so long to get back to you, I've just been in the
process of moving and read my mail on another machine for a while
- I was tidying the Breast Cancer Folder today and I realised I 
had missed your message I'm really sorry -I have now added it to 
the top of the feedback page but I realise this is too late for 
you to get responses for your paper, I hope it went well? If you 
could face it I'd love to include an email response to the conference?

best wishes

Nina Pope


>Nina,
>Your site was one of the first places I ever found back in 1996 (as
>someone affected by a breast cancer diagnosis), which enabled me to link
>to other places of interest on the internet. I was saddened to hear
>about Marie's death, and I'm glad to know that you have managed to
>continue the site.
>Since last year, I have been running a mailing list for those who are
>interested in using complementary therapies as part of their breast
>cancer treatment. I am based in the UK, but the membership of the list
>is global. You can get more information about the list at
>http://www.bcsupport.freeserve.co.uk/list_info.htm
>I have been offered the opportunity to speak at the forthcoming World
>Conference on Breast Cancer in Ottawa, which is being held July 26-31,
>1999. My topic will be the use of the Internet for Online Support. This
>will be from the perspective of a survivor. I would love to get some
>feedback from others on this topic and would appreciate it if you can
>include this message on your feedback page.
>Love,
>Belinda Berry
>mailto:berry@flyingcameraco.demon.co.uk

*****************************************************************
>Dear Nina,
>Since we last communicated our
>organization has undergone some changes.  We have changed our name and have
>incorporated.  We also have a new website and web address.  In case you're
>interested in looking at the site we are at:
>
>www.facingourrisk.org
>
>I hope that you will take a look at our new site and update your resource
>page.
>Sincerely,
>Sue Friedman

Thanks for the update Sue - I will add this to the feedback page.

Best wishes

Nina
*****************************************************************

Dear Davit Tatishvili - Thank you for your message to the UK Breast Cancer Awareness site, I run the site on a voluntary basis and so the site can not really offer you any 'support' - however I will post your message onto our feedback page where other visitors can see it and I will include your email address with the message -

Let me know if this is not what you would like me to do,

best wishes

Nina Pope

>Dear Sir/Madame,
>
>My name is Davit Tatishvili. I'm writing to you on behalf of 
>Ultrasonography Training and Research Center in Tbilisi. 
>
>
>We are looking for information about supporting our activity, so let me 
>tell briefly about us and the problems we are working on.
>
>It is common knowledge, that achievements of medicine in the world in the 
>sphere of oncology are remarkable. Especially good results have been 
>reached in treatment of breast cancer. 95% of cancer cases, which are 
>revealed at earlier stage, are curable.
>
>That is why in economically developed countries prophylactic centers for 
>early treatment of breast cancer have been established a long time ago.
>
>We are working on to start the Breast Care Campaign in Georgia.
>
>
>According to the official data of the Republican Center of Oncology in 
>Georgia (former SU) the amount of cases of breast cancer among the female 
>population has increased up to 7-10%. Most of these cases have a lethal 
>end. It was confirmed as well by the measures carried out by the 
>travelling help clinics, organized by the Center. 
>
>
>Our main objectives are:
>
>
>    a.. arranging of travelling help clinics in the different regions of 
>Georgia, where locally residing women will be examined; 
>
>
>    b.. carrying out the propaganda of the necessity of the breast cancer 
>prophylactic examination among the wide range of population by means of 
>mass media; 
>
>
>    c.. teaching women the method of self-examination; 
>
>
>    d.. organizing refreshing courses for the relevant medical stuff in 
>the regions. 
>
>
>We will do our best to carry out the above mentioned measures.
>
>
>However, we stand in need of some humanitarian aid to get monetary help 
>to fulfil our program.
>
>
>We hope to get help from you.
>
>
>Yours Sincerely
>
>
>Professor David Tatishvili
>acacia@ip.osgf.ge
>
>
>Director of Ultrasonography Centre

*****************************************************************
>Dear Friends:
>
>Just stopped by and saw Jo Spence's exhibition.  I was really touched by it 
>all.  Thank you for hosting such a wonderful website.  Best wishes in your 
>important work.
>
>Donald Whipple Fox
>East Metro Multicultural Director
>American Cancer Society, Midwest Division
>(Minneapolis/St. Paul, Minnesota)

Thanks for your message Donald

Nina Pope

*****************************************************************
>Hi!
>Please can you visit http://www.eppingbreast.net and if appropriate consider
>adding a link from your site
>
>Ashraf Patel
>E-Mail:breastsurgeon@clara.net
>Home Page: http://www.eppingbreast.net

Ashraf - thanks for your message to the UK Breast Cancer Awareness site, 
I'm sorry it has taken me a while to get back to you - I'm currently 
caught up with moving house and as I run the site on a voluntary basis it 
takes a while for me to catch up some times - however I'll try to go and 
see your site and will certainly add your message to our next feedback 
page.

best wishes

Nina Pope

*****************************************************************
>I've just had a quick look through the excellent breast cancer awareness
>website which you maintain on easynet.  Thank you for including details of
>the Breast Care Campaign.  I'm thrilled to tell you that we now have our
>own website which has tons of information on benign conditions.  If you
>would like to have a look you can find us on: 
>
>http://www.breastcare.co.uk
>
>Please feel free to set up a link between your site and ours if you so
>wish.  
>We are currently developing links to other organisations on our web site -
>would you like your information to be included?
>
>With best wishes
>
>Renata Truszkowska

Renata - thanks for your message to the UK Breast Cancer Awareness Site, 
great news that you now have your own pages, I'll change the link on our 
contacts page to go straight through to you. Please do make a link back 
if you'd like to.

best wishes

Nina Pope

*****************************************************************
I got the following message today regarding antiperspirants. Just found your 
address from the web. (I'm not sure if I have come to the right person). 
Would you know if it is based on facts????

Thanks


Thanks for your message to the UK Breast Cancer Awareness 
Site, the message you passed on has been floating about for some time, I 
have discussed it with a friend and we both agree that the site below 
provides a good explanation of why these claims do not stand up to close 
scrutiny:

http://www.pathguy.com/antipers.htm

I hope this is of some help,

best wishes

Nina Pope
						
*****************************************************************

>I visited your site and wondered if you might include a link to mine.  I 
>am a surgeon based in the UK and run a site at:
>
>www.thebreastclinic.com
>
>Kindest regards
>
>Stephen Kettlewell FRCS

Stephen - thanks for your message to the UK Breast Cancer Awareness site, 
I will certainly add your message to our next feedback 
page.

best wishes

Nina Pope
*****************************************************************

Dear madam,

Could you possibly supply me with details of all or any breast cancer
support groups in glasgow area. 

Thank you

Your message was copied to me by Nina Pope from the UK Awareness site. 
Other sources for information on breast cancer support groups in the
Glasgow area would be -

Breast Cancer Care's Scottish office (Tel 0141-221-2233, email
breastcancercareScotland@BTInternet.com

CancerBacup also maintain a directory of support groups on their website at 


In case you don't have direct access to their website, I've copied the
details of the following groups for you from it. There are several more
addresses on the site, but these seemed the most relevant to the Glasgow
area; others are in Kilmarnock, Irvine, and Greenock. Although Tak Tent is
a general cancer support group, many of them will have several people with
breast cancer attending the group - often, from the frequency of breast
cancer, breast cancer patients are the largest single group at meetings.

I hope you find this helpful.
Regards,
Lyn Duffus

--------------------------------------------

 Name:    BELLSHILL MASTECTOMY SELF HELP GROUP
 Address:  31-3 Silverwells Crescent, Bothwells, Strathclyde G71 8DP
  Contact:  Joyce E Jarvie 
 Contact by:  Tel: 01698 854607
 Available:   Any time
 Activities:  Support groups, mastectomy, breast cancer, women, telephone
support 
 Meetings:    2nd Tuesday each month, 7.30pm, The Cultural Centre, John
Street, Bellshill. 
 

 Name:   MOTHERWELL MASTECTOMY SELF HELP GROUP
 Address:   17 Lithgow Drive, Cleland, Lanarkshire ML1 5RB
 Contact:   Anna Sutherland 
 Contact by:  Tel: 01698 861010
 Activities:  Telephone support, support groups, literature, mastectomy,
breast cancer,  Meetings:     Meet every 1st Monday of the month, at Elm
Church Hall, 7.30pm 
          

 Name:   TAK TENT CANCER SUPPORT SCOTLAND
 Address:  The Western Infirmary, Block C20, Western Court, 100 University
Place, Glasgow, Strathclyde G12  6SQ
 Contact:    May Buchanan
 Contact by:    Tel: 0141 211 1930
 Activities:  Support groups, cancer information services, drop in centres,
counselling,  Meetings:     Each group meets monthly. 
 Notes:       For all kinds of cancer. Support, information, for patients,
families,friends and health professionals.  Network of support groups
across Scotland. Groups based in Campbeltown, East Kilbride, Glasgow
(Southside, SouthernGeneral, Springburn West End, East End), Hamilton,
Kirkcudbright, Paisley,   Rothesay, Milngavie, Tighnabruaich, Clackmannan,
Fort William, Kirkintilloch. Contact central office

*****************************************************************
>Dear Nina,
>               My I'm 17 years of age. I'm at
>Lancaster and Morecambe Colledge doing a National Diploma in Science and
>Health Studies. For one of my assignment's i have to find some research out
>on a major medical condition, i have searched through your web pages and
>decided to
>do about breast cancer. I'm just wondering if you could send me some more
>information on this releated subject like:
>* Which age groups are most comonly affected
>* Can males get breast cancer? How does it affect them?
>This would help me a great deal and i would be very thankful for all the
>information you could send me. There is one more thing if there is any
>chance you know about the statistical information on this topic then i
>would be pleased to know.
>Thankyou very much for your time and effort

Thank you for your message which you sent to the UK 
Breast Cancer awareness site - I'm afraid I run the site voluntarily in 
my free time, and I am not a medical professional so you may well be 
better off contacting one of the organisations listed on the site 
directly if you need more information (bacup or Breast Cancer Care 
maybe). However, obviously you could use the stats on our front page, and 
yes men can suffer from breast cancer so you could persue that line of 
research. 

best wishes

Nina Pope

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