To: quine@quine.org.uk
From: m.nally@dial.pipex.com (Marie Nally)

Hello Quines,

Pleased to have found your links to our site - you should have e-mailed us! We now have a 
Diary page on our site and if you have looked at this you will see that Nina and I (who make 
the site) both used to live in Edinburgh and still have ties there.

You might also like to link to Maggie's Centre, take a look:

http://www.maggies.ed.ac.uk/

best wishes,

Marie

Date: Wed, 30 Jul 1997 02:10:16 +0000
To: Marie Nally 
From: Lesley - quine@quine.org.uk

Subject: Re: Breast Cancer links

Hello all,
  delighted to receive your message and wearing my 'techie' hat the URL!
Last October we highlighted breast cancer awareness week and will do so
again. If you know of any special events/fundraisers then we'll gladly add
them to our 'Events' section.

Way off-topic but I've been very involved with the women's campaign for a
Scottish Parliament (devolution vote on 11th September 1997) and we're
having a hard time getting people to give us their views on what impact a
Scottish Parliament would have on women. (it's been pointed out that all
responsibility for gender equality will remain with Westminster). But given
that 'Health' will now come under the remit of a SP are you aware at all of
how Scottish medical charities are planning to handle this change or would
you know someone able to give an informed opinion on the subject?

P.S. For more details please visit the Scottish parliament section of the
Engender site (URL below).

Keep in touch!

Lesley (Quine Site Administrator)

--
Quine Online Scottish Women's Site, http://www.quine.org.uk, quine@quine.org.uk
Engender, http://www.engender.org.uk, engender@engender.org.uk
"There's ladies and there's wifies...and you can always tell the difference."
     - Jessie Kesson 

Hi Lesley,

>Last October we highlighted breast cancer awareness week and will do so
>again. If you know of any special events/fundraisers then we'll gladly add
>them to our 'Events' section.

OK. Most are likely to be run by Scottish Breast Cancer Campaign. You might want to join 
and get on their mailing list. The address 

po Box 12202
Edinburgh EH10 5EN

>But given
>that 'Health' will now come under the remit of a SP are you aware at all of
>how Scottish medical charities are planning to handle this change

No.

>or would
>you know someone able to give an informed opinion on the subject?

Suzanne Wotherspoon, Convenor of the Scottish Breast Cancer Campaign, would prob be a good 
start. She is knowledgeable on parliamentary matters related to breast cancer. Bettina Strang, 
wife of Gavin Strang, used to be on the board of the SBCC but is now chair of the UK forum of 
Europa Donna, the pan-European breast cancer organisation. I will give you Suzanne's phone 
number below but this is her home number so I don't give it out willy-nilly and she may be 
touchy about being phoned. Post will reach her at the SBCC address.

Sorry, I don't really have any more general women's health contacts I can suggest.

best wishes,

Marie

------------------------------------------------------

From:Marianne 
To: UKBCA@somewhere.org.uk
Date: Tue, 29 Jul 1997 10:30:51 +0000
Subject: lymphedema mailing list

Joan,
   You might like to sub to the lymphedema mailing list

To subscribe:

Send email to LISTSERV@LISTSERV.ACOR.ORG
Leave Subject blank
In body of message just write:
SUBSCRIBE LYMPHEDEMA YourFirstname YourLastname

This is the URL for the National Lymphedema Network:

http://www.wenet.net/~lymphnet/index.html

This is the URL for Bosom Buddies, a very good web site with a lot of info
about lymphedema:

http://www.go-icons.com/bosombuddies.htm


Hope this will be helpful

Marianne

Date: Sun, 30 Mar 1997 15:59:17 +1200
From: Joan
To: UKBCA@somewhere.org.uk
Subject: lymphodema

Dear Marie or Nina,
I have been looking at your Cancer Helpline. I am very interested in
getting any information on lymphodema. I had my right breast removed
two and a half years ago and half my lymph glands removed. I am doing
very well apart from the lymphodema which affects me every day. 
I would appreciate any information you could help me with.
                      Thanking you 
                         yours sincerely
                                                 Joan

To: Marianne
From: m.nally@dial.pipex.com (Marie Nally)
Subject: Re: lymphedema mailing list

Thanks Marianne, I'll forward your message to Joan and put it on our Feedback page. 
I won't include your e-mail address.

best wishes, Marie

From: Marianne
To: m.nally@dial.pipex.com (Marie Nally)

You're welcome Marie,
Was pleased to find your web site today after
corresponding with a woman in the UK who is
writing to the internet BC mailing list

You might like to put sub info about it on your
web site also (if it isn't there already)

listserv@morgan.ucs.mun.ca
blank subject
for the message put:

subscribe breast-cancer yourfirstname yourlastname


    After corresponding with this woman in London
I wonder if you've thought about setting up a mailing
list for women living in the UK with BC.

       The net list might be useful to discuss issues
globally but perhaps there are special issues you
folks might like to talk about.

        If you are interested......I believe the person
who publishes the listserv software offers the
opportunity for free mailing lists for public 
service interest like this.   If you'd like more info
let me know

         The folks in the UK might also be interested
in knowing that there is now a mailing list for
women (and men) with inflammatory BC and a special
web site also.

** Group mail: ibc@bestiary.com
** To unsubscribe: ibc-request@bestiary.com, say "unsubscribe" in body.
** Public Web Site: http://www.bestiary.com/ibc/

To subscribe one can write to:  ibc-request@bestiary.com, say 'subscribe' in body of 
message

Hope this will be helpful......and hope you'll consider
subbing to the net BC list to tell folks about your site
and UK resources

Marianne


Hi again Marianne,

>You might like to put sub info about it on your
>web site also (if it isn't there already)

It is, in Feedback, but I'll put your message in the latest batch when I add it in Aug. 
I did join the BC list for a while but personally couldn't handle the volume of mail 
and the US bias. There is some discussion about setting up a BC list and/or a cancer 
list in the UK and also running a fixed term/membership BC group in the UK similar 
to a teleconferencing support group recently run by a working party on the needs of 
women with secondary breast cancer. I don't intend to set any of these up single-handedly
 and am trying to encourage UK BC charities and other interested web'sters to do so. Most 
UK cancer charities do not have web sites and only a few have recently gone on e-mail.

>        If you are interested......I believe the person
>who publishes the listserv software offers the
>opportunity for free mailing lists for public 
>service interest like this.   If you'd like more info
>let me know

Yes, please that would be helpful.

>         The folks in the UK might also be interested
>in knowing that there is now a mailing list for
>women (and men) with inflammatory BC and a special
>web site also.

I'll put this in Feedback too.

>Hope this will be helpful......and hope you'll consider
>subbing to the net BC list to tell folks about your site
>and UK resources

Our URL should be in the archives, I did mention it and I believe other UK users also have. 
Feel free to mention it again. I hope to up-date the site on 1st of Aug but Feedback  
additions might not go on until a bit later.

best wishes,

Marie

Dear Marie,
    I do hope that you'll be able to set up a UK mailing list.
This is the website with listserv info:

http://www.lsoft.com/listserv-lite.html#WHATFE

If you would like you can send a message to the 
breast-cancer mailing list without actually being a subscriber.

Folks who don't access the archives might not find out about
your site.   

Perhaps you'd like to consider posting a message every month
with info about UK resources so that the newcomer subscribers
will see it.

You can just send it to

breast-cancer@morgan.ucs.mun.ca

         
Best wishes with all your endeavors

Marianne

Hi Marianne,

>http://www.lsoft.com/listserv-lite.html#WHATFE

Thanks for that.

>Perhaps you'd like to consider posting a message every month
>with info about UK resources so that the newcomer subscribers
>will see it.

That's a good idea. I'll do that each time I up-date the site (roughly the start of each month).

best wishes, Marie

Date: Wed, 30 Jul 1997 21:15:54 +1200
From: Joan 
To: Marie Nally 
Subject: Thanks

Hello Marie, Many thanks for your message,I have sent a message to
Listserv & Bosom Buddies(I love their chosen name) and I look forward to
making contact with others in the same position as myself. I have been
trying some alternative natural remedies and have felt some relief.I
don't like drugging myself and I try to get along without pills.
   Best wishes from New Zealand
                    Joan

------------------------------------------------------
From: ilanas
Organization: The NSW Breast Cancer Institute
To: UKBCA@somewhere.org.uk
Date: Mon, 21 Jul 1997 12:56:47 +1000
Subject: breast cancer pink ribbon

Dear Marie Nally or Nina Pope,

We are currently working on the promotion and marketing of Australia's 
breast screening program - providing free mammograms for women over 
40 but specifically targeting the 50-69 age group. 

We are now developing marketing materials, and hope to produce 'pink 
ribbon'  badges. These will be offered to all hairdressers in NSW as 
part of Austalian Breast Cancer Day (ABCD) in October this year.

On looking at your web site we noticed an illustration of the pink 
ribbon in the title bar which would be excellent for our badges. 

Is there some way that we can use this image? I noticed 
that it is in jpeg form, and thus could be easily forwarded to our 
email address. 

If this is at all possible, and the illustrator is happy to help 
us please contact me on this forwarding address. For more 
information about our project, please refer to our web site at 
http://www.bci.org.au. 

Thankyou

Ilana 

Hello Ilana,

>On looking at your web site we noticed an illustration of the pink 
>ribbon in the title bar which would be excellent for our badges. 
>Is there some way that we can use this image? I noticed 
>that it is in jpeg form, and thus could be easily forwarded to our 
>email address. 

The image is a real ribbon which has been scanned in. You are welcome to download the title 
bar and crop out the ribbon image. Let me know if this doesn't work and you need me to e-mail 
a jpeg (though I often have probs e-mailing attachemnts - we work on Macintosh's). 

Best wishes,

Marie

------------------------------------------------------

Date: Thu, 10 Jul 1997 17:06:54 +0200
From: jas
To: UKBCA@somewhere.org.uk
Subject: Links not found

Hello,
I am just looking through your pages and cannot locate the links to the
following:-
The Diary,
Marie Curie,
Cancer contacts UK
I thought you would like to know this.
Also do you know sites where I might find out more about treatments
offered for breast cancer? ie more medical information.
many thanks,
Anna 

To: jas
Subject: Re: Links not found

Hi Anna,

>I am just looking through your pages and cannot locate the links to the
>following:-
>The Diary,
>Marie Curie,
>Cancer contacts UK
>I thought you would like to know this.

Did you get "404 Not Found" or what? I just checked these and all came up immediately 
for me. Perhaps you were just trying at a busy time?

>Also do you know sites where I might find out more about treatments
>offered for breast cancer? ie more medical information.

Did you look at our Hotlist? Depends if you want info specific to France, clinical trials, 
general info or what.  CancerNet and Oncolink are good general sites to search on.

Let me know if you still have trouble getting through to our links and if I can help with more 
specific info.

Regards,

Marie

Hi,

Yes I got 404 not found, and I was trying to access at a reasonably busy
time - 5.30 French time, ie 4.30 UK time and just about when the West
coast were all coming on. I will try your suggestions, I wanted more
info on clinical trials etc. I will let you know if I still can't access
your other pages. Many thanks for your help,
Anna

------------------------------------------------------
Date: Thu, 26 Jun 1997 22:05:25 -0800
From: zapped
To: UKBCA@somewhere.org.uk
Subject: Cancer can now be cured not just treated

Check out this web site. I am a breast cancer patient and I have done
what this book recommends and feel I has been the answer to my cancer
problem. 

http://www.galaxymall.com/market/cure.html

Virginia 

Hi Virginia,

>Check out this web site. I am a breast cancer patient and I have done
>what this book recommends and feel I has been the answer to my cancer
>problem. 
>
>http://www.galaxymall.com/market/cure.html

I have looked at this site. Please let me know if you/zapped wish to provide a free  
copy of this book so that I can decide if I wish to review it for our site.

Regards, Marie 


Dear Marie Nally,
Yes I would provide the book "The Cure For All Cancer" by Hulda R. Clark
free if you will read it and give me your feedback. Are you a health
professional or cancer patient? What is your interest in cancer?
Please send your mailing address. If you are out of country (not in the
US) I would ask that you provide postage. 


Hi Virginia,

>Yes I would provide the book "The Cure For All Cancer" by Hulda R. Clark
>free if you will read it and give me your feedback. Are you a health
>professional or cancer patient? What is your interest in cancer?

I have metastatic breast cancer and I set up and run the UK breast cancer web site 
with another Nina Pope. We do this voluntarily and with no funding. All of this info 
is on the web site.

>Please send your mailing address. If you are out of country (not in the
>US) I would ask that you provide postage. 

I am not in the US. I am not able to pay postage. We usually like to review books that 
have particular relevance to UK breast cancer patients. I am put off by claims of cure. 
If it were true, wouldn't the world be beating a path to the door? I am also put off by 
commerical-sounding URLs such as 

http://www.galaxymall.com/market/cure.html

If you still want to send me the book, I will consider reviewing it. My address is below.

Marie

Hi Virginia,

>you choose to believe that there is no cure. 

You have mis-interpreted what I said:

>>I am put off by claims of cure. If it were true, wouldn't the world be beating a path 
to the door?

I am happy to look at the evidence. I have read of and received e-mail regarding a number 
of "cures" for cancer. I do not automatically believe everything I am told.

>http://www.cris.com/~healthy/cfac/cancerbk.htm

I will look at this when I have a chance.

Marie

------------------------------------------------------
Date: Mon, 23 Jun 1997 23:47:46 +0100
From: charles
To: UKBCA@somewhere.org.uk
Subject: Mastectomy Swimwear

Dear Joan My wife underwent a mastectomy last year.
Please are you able to tell me of suppliers of suitable swimwear in the
UK?
John Lewis, DH Evans, and Selfridges in Oxford Street seem to have a
very limited and rather expensive selection at present.

To: charles
Subject: Re: Mastectomy Swimwear

Hello Charles,

I am not sure if you have e-mailed via our site or your message was forwarded to me.

I assume you are in London if your wife has been shopping on Oxford St. Breast Cancer Care 
can offer advice on mastectomy swimwear. I know they have catalogues of several suppliers 
and have samples and a fitting room in the London office. You can contact them at:

Breast Cancer Care 
Kiln House
210 New Kings Road
LONDON SW6 4NZ

Helpline (0171) 384 2344, Nationwide Freeline 0500 245 345
E-mail: support@bccare.demon.co.uk 

I'm not sure how responsive they will be on e-mail, they only recently went on-line and are 
still gettting to grips with it.

Lands End Catalogue also offers a mastectomy swimming costume. I think mastectomy 
swimwear does tend to be expensive, e.g. £40 or so and if, like me, you prefer cotton, it is 
hard to find what you want.

I think you can probably order mastectomy swimwear over the WWW (maybe even from Lands 
End). I do not have any URLs to hand but could do some surfing if this would be of interest.

Best wishes,

Marie
http://www.easynet.co.uk/aware/

------------------------------------------------------

Date: Wed, 04 Jun 1997 00:08:10 -0400
From: green
To: UKBCA@somewhere.org.uk
Subject: donations to bristol center

Hi,
you've got a great site here - I was wondering how to send a donation to
the Bristol Cancer Help Center from the USA, and where to mail it. Is a
money order from a US bank acceptable? 

Thanks and keep up the great work !

Hi,

>you've got a great site here - 

Thanks.

>I was wondering how to send a donation to
>the Bristol Cancer Help Center from the USA, and where to mail it.

Bristol Cancer Help Centre
Grove House
Cornwallis Grove
Clifton
Bristol BS8 4PG
 
>Is a money order from a US bank acceptable? 

You'd have to check with Bristol. I know that unless one has a special arrangement with the 
bank, there can be a ridiculously high charge (e.g. £15) for banking a cheque in a foreign 
currency.

Regards,

Marie