feedback
This page contains Feedback we've received from October through November 1997.


To: UKBCA@somewhere.org.uk
Date: Wed, 26 Nov 1997 14:40:40 +0000

To Marie Nally or Nina Pope,

Hi,

I am a student at Portsmouth University studying IT.  One of my 
options is the Internet and I have been set an assignment looking at 
healthcare issues available on the net.  I have chosen to specialise 
in the area of breast cancer and wanted to restrict my search to the 
UK to see how we are helping paitents here and how we are supporting 
our medical profession.  However, apart from your valuable site and 
the fantastic exhibition by Jo Spence I am having difficulty locating 
much else.  Do you know of any other pages worth investigating or if 
there are special pages where the medical profession can stay up to 
date on research?  I would be very grateful for any help as I seem to 
be at a standstill with this.

Many thanks

Claire 


Subject: Re: Breast cancer on the net

Hi Claire,

> your valuable site and the fantastic exhibition by Jo Spence

Thanks.

>I am having difficulty locating much else.  

That's why we started our site.

>Do you know of any other pages worth investigating

Take a look at:

BACUP (UK - cancer-wide)
http://www.cancerbacup.org.uk/

Breast Cancer Campaign (UK breast cancer research funding org)
http://www.bcc-uk.org

CancerHelp UK (cancer-wide)
http://medweb.bham.ac.uk/cancerhelp/

Women's Nationwide Cancer Control Campaign (UK- breast and gynaecological cancers)
http://ds.dial.pipex.com/town/square/gm40/index.htm

Europa Donna (pan-Europen breast cancer)
http://www.vois.org.uk/europadonna/

Cancerkin (UK - hospital-based cancer centre)
http:www.vois.org.uk/cancerkin/

Maggie's Centre (UK - hospital-based cancer centre)
http://www.maggies.ed.ac.uk
 
>if there are special pages where the medical profession can stay up to 
>date on research? 

CancerNet UK
http://www.graylab.ac.uk/cancernet.html

The National Cancer Institute's CancerNET UK Information Database is provided by CancerWEB. The site includes treatment statements for patients and physicians, prevention summaries, risk factors, and investigative drug information. There is also a list of links to cancer sites in the UK, including universities, hospitals and research institutions.

http://www.graylab.ac.uk/sitenet/cancuk.html

Guide to Internet Resources on Cancer (126 links to UK cancer-related sites)
http://www.ncl.ac.uk/~nchwww/guides/clinks1.htm

Hope this helps.

best wishes,

Marie

*****************************************************************

Date: Thu, 13 Nov 1997 12:51:55 -0500 (EST)
To: UKBCA@somewhere.org.uk
Subject: Eating The Elephant a play about breast cancer

Dear Marie Nally and Nina Pope

I thought you might be interested to know that my theatre company The Ashton
Group Contemporary Theatre is touring an award nominated new play about
breast cancer next March/April/May: EATING THE ELEPHANT by Julia Darling.
Julia had breast cancer in 1995 and the play reflects her experiences. It's
powerful, moving and very funny...a really life affirming show.

I'm booking the second tour at the moment and will have dates next month.

Best wishes
Rachel

From: m.nally@dial.pipex.com (Marie Nally)
Subject: Re: Eating The Elephant a play about breast cancer

Hi Rachel,

>I thought you might be interested to know that my theatre company The Ashton
>Group Contemporary Theatre is touring an award nominated new play about
>breast cancer next March/April/May: EATING THE ELEPHANT by Julia Darling.

Do you mean touring the UK? Great title.

>I'm booking the second tour at the moment and will have dates next month.

Let us know. If it's in the UK we'll put it in the Diary, 
otherwise on our Feedback page.

Regards,

Marie

Date: Thu, 13 Nov 1997 20:24:06 -0500 (EST)
To: UKBCA@somewhere.org.uk
Subject: Eating The Elephant - UK tour

Dear Marie Nally and Nina Pope

Thanks for your mail. 

Yes, Eating The Elephant is touring the UK (England and a few dates in
Scotland)
It's still booking but when I've got the full schedule I'll send it to you
with all the details.

Regards

Rachel Ashton


Date: Wed, 19 Nov 1997 09:57:01 -0500 (EST)
To: UKBCA@somewhere.org.uk
Subject: Eating The Elephant-National Tour

Hi Marie

I called recently about my national tour of Julia Darling's Play about breast
cancer.
Well we had some good news, we've been awarded lottery funding to take it out
with a photographic exhibition of portraits of women who have had the
disease. The photos will be taken in specially set up workshops around the
country by NE photographer Sharon Bailey. I'm about to appoint an arts in
Health worker to help up these workshops. More news later

Cheers
Rachel 

*****************************************************************

Date: Fri, 31 Oct 1997 19:58:16 -0500 (EST)
To: UKBCA@somewhere.org.uk
From: Eppie 
Subject: Breast Cancer Donation

For Attention Marie Nally or Nina Pope
I came across your E Mail address on the internet and wondering if you could
be of assistance . I would like to make a small donation to a cancer society
in the name of a young cousin who recently passed away as a result of Breast
Cancer , in London England . Could you please give me an address that I
could send a cheque to, and would this "charity " send a note to the Family
concerned.
Hoping to hear from you 
Eppie

From: m.nally@dial.pipex.com 
Subject: Re: Breast Cancer Donation

Hello Eppie 

I am sorry to hear of the loss of your cousin.

There are a number of cancer charities in the UK which provide support and 
information or do research on breast cancer. There are details of most of these 
on our Contacts pages, if you wish to know more.

http://www.easynet.co.uk/aware/contacts/index.htm

Breast Cancer Care is the national organisation which provides support and 
information, including a Younger Women's Network. You can contact them at:

Breast Cancer Care
Kiln House
210 New Kings Road
LONDON SW6 4NZ
Helpline (0171) 384 2344, Nationwide Freeline 0500 245 345

E-mail:support@bccare.demon.co.uk

Please let me know if I can help with further information.

Kind regards,

Marie 

*****************************************************************

Date: Thu, 30 Oct 1997 12:57:16 -0500 (EST)
From: Sandie
To: UKBCA@somewhere.org.uk
Subject: Please help!!

We are two students who need some information on Breast Cancer Awareness
month for a PR project.  If you have any answers to any of the following
questions, we would be very grateful!

1/  Do you know how Breast Cancer Awareness Month came about?  Was it a
single charity's idea?
2/  How long has it been happening for (how many years?)
3/  How did you/breast cancer charities communicate that it was breast cancer
awareness month to the public?
4/  How do you publicise charitable events?
5/  What are the aims of this years campaign?  Is it to raise a certain
amount or to develop awareness?
6/  How many people are involved in this campaign?
7/  Who specifically are you targeting?
8/  How long have you been preparing for Breast Cancer Awareness month?
9/  Were you limited in what you could do by budget?
10/  Is there any press pack that you could send us?
11/  What events have been organised?


We look forward to hearing from you even if it is just an answer to one or
two of the above questions.  Good luck in the cause.

Sandie & Stephanie 

Subject: breast cancer awareness month - reply

Hello Sandy and Stephanie,

BCA month came to the UK from America, where the idea of the pink ribbon also 
originated. I have been asked about the origins in America but have never found a 
definite answer. I guess it was an idea whose time had come and arose in a number 
of places in the US about 4 or 5 years ago.

>2/  How long has it been happening for (how many years?)

This is 3rd year that BCA month has happened in the UK, with the bc organisations 
taking it up and Estee Lauder putting posters in the tube.

>3/  How did you/breast cancer charities communicate that it was breast cancer
>awareness month to the public?

Our website deals almost exclusively on-line, via e-mail. I have also attended a 
number of conferences and demonstrated the website during October and been 
involved in bc info being put on Channel 4's web site. 

There are over 25 bc-related UK organisations on our Contacts pages. Each 
organisation's own press office communicates with the press and public, there has 
been no coordinated effort apart from our Diary page of which I am aware.

>4/  How do you publicise charitable events?

On our Diary page.

>5/  What are the aims of this years campaign?  Is it to raise a certain
>amount or to develop awareness?

There are over 25 bc-related UK organisations on our Contacts pages. Each gives 
info about their own aims - support, info, research. The aim of our website has 
been to raise awareness.

>6/  How many people are involved in this campaign?

2 of us made and maintain the website voluntarily in our own time with no funding.

>7/  Who specifically are you targeting?

People affected by breast cancer in the UK.

>8/  How long have you been preparing for Breast Cancer Awareness month?

Since August.

>9/  Were you limited in what you could do by budget?

No, we do not want funding because it comes with strings. We prefer our 
independence. We are limited by our own time and energy. 

>10/  Is there any press pack that you could send us?

No. we do not produce printed matter. Try Breast Cancer Care, contact info on

http://www.easynet.co.uk/aware/contacts/bccare/index.htm 

>11/  What events have been organised?

See our Diary page:

http://www.easynet.co.uk/aware/events/diary.htm

It will change in the next few days but there will be a link from the Nov Diary to 
the "Previous Diary" at the bottom of the page.

>We look forward to hearing from you even if it is just an answer to one or
>two of the above questions.  Good luck in the cause.

Thanks.

best wishes,

Marie

To: m.nally@dial.pipex.com
Subject: Re: breast cancer awareness month - reply


Thanks ever so much for your reply, it's very helpful!

Sandie

*****************************************************************

Date: Sun, 26 Oct 1997 15:00:42 +0000
From: m.nally@dial.pipex.com (Marie Nally)
Subject: Re: awareness month

Hi Brian,

>I run the web pages for our Pantomime group one of whom has been told
>she has breast cancer.
>I was hoping to ad the pink ribbon symbol to our web page if that is ok?

Sure, though I think all our jpg's and gifs which include the pink ribbon also have 
text, so you would need to cut in Photoshop or similar software. I think another of 
our visitor's has done this and put the pink ribbon on his page:

http://dspace.dial.pipex.com/jjsweeney

There used to be a whole site of different pink ribbons but I no longer have the URL 
so you'd have to search for it.

Best wishes to you and your friend,

Marie

*****************************************************************


Date: Wed, 22 Oct 1997 01:24:03 EDT
To: UKBCA@somewhere.org.uk
Subject: t-shirts

i currently own a "fashion targets breast cancer" t-shirt but it is getting
extremely owrn from so much use
how can i purchase another one?
can you send me this information?
i would graetly appreciate you help
thank you
laura

Subject: Re: t-shirts
Hi Laura,

>i currently own a "fashion targets breast cancer" t-shirt but it is getting
>extremely worn from so much use
>how can i purchase another one?
>can you send me this information?

These T-shirts were produced to benefit  BREAKTHROUGH. I am not sure if they are 
still available but BREAKTHROUGH are now producing the Wicked Women T-shirts. 
You can contact BREAKTHROUGH at

BREAKTHROUGH
6th Floor
Kingsway House
103 Kingsway
London WC2B 6QX
BREAKTHROUGH 'Fundraising Hotline' (0171) 405 5111
 
Regards,
Marie

*****************************************************************

Date: Tue, 21 Oct 1997 15:39:24 +0100
From: Lynne Marie
Subject: Breast Cancer on the WWW
Hello from Cambridge!

I was 32 when I discovered the lump that changed my life.  That was just
over three years ago and it's been tough.  Surgery, chemotherapy, and
radiotherapy - all while 5000 miles from home (I'm an American student
attending university in London).  I just thought I'd let you know that I
had visited your web pages and they are quite nice.  Easy to read and
navigate.  I've added a link to your page from my own Women's Health
links page at

http://www.maths.qmw.ac.uk/~lms/research/women.html

Good luck with your endeavors.

Lynne

To: Lynne Marie
From: m.nally@dial.pipex.com (Marie Nally)
Subject: Re: Breast Cancer on the WWW


Hello Lynne Marie,

>I was 32 when I discovered the lump that changed my life.  That was just
>over three years ago and it's been tough.  Surgery, chemotherapy, and
>radiotherapy - all while 5000 miles from home (I'm an American student
>attending university in London). 

Good to hear from you. I am also American, though I have lived here 18 years. The NHS is certainly different to US medicine, at least in presentation. You must have had a lot to cope with.

>had visited your web pages and they are quite nice.  Easy to read and
>navigate.  

Thanks.

I've added a link to your page from my own Women's Health
>links page at
>
>http://www.maths.qmw.ac.uk/~lms/research/women.html

Good. I'll have a look. We'll put your e-mail in Feedback when we change the site 
for Nov and will make yur URL a link from there.


Take care. Best wishes,

Marie

*****************************************************************

Date: Mon, 20 Oct 97 16:15:11 PST8
Subject: Cancer Care

     
     I would like information on how i may purchase items from Cancer Care.
     
     Can people in the United States make a purchase.
     
     regards,
     linda e.

Subject: Re: Cancer Care

Hello Linda,
    
>     I would like information on how i may purchase items from Cancer Care.
>     
>     Can people in the United States make a purchase.

Do you mean Breast Cancer Care? You can e-mail them on

support@bccare.demon.co.uk 

and ask. If you need more info or meant another organisation, contact me again.

Regards, Marie

*****************************************************************

Date: Sat, 11 Oct 1997 20:34:38 -0400
Subject: are there any prevention

measures out there? My daughter is 47 and at high risk with her parents
 and grand parents with hormone feed cancer. Help'

Leo

Subject: Re: are there any prevention

>measures out there? My daughter is 47 and at high risk with her parents
> and grand parents with hormone feed cancer. Help''

Hello Leo,

FIrst, let me say clearly that I cannot offer any medical advice. 

There are a number of factors which put a woman at increased risk of breast 
cancer, but women without these 'risks' get cancer and women with these 'risk' 
factors don't.  

A good book which outlines the risk factors and some of the 'preventions' available 
is Dr Cathy Read's "Preventing Breast Cancer - The Politics of an Epidemic." (Pandora 1995)

http://www.easynet.co.uk/aware/book/reviews/read.htm

This is not a 'how to' book, (there really isn't and can't be one), but it puts one's 
worries in context and gives you an idea what lifestyle changes might make a 
difference. It also has an extensive bibliography.

I hope this is of help.

best wishes,

Marie

*****************************************************************

Date: Wed, 08 Oct 1997 16:06:36 -0700
From: Kevin 
Subject: Re: Website
To Marie Nally or Nina Pope:

What is your policy on link exchanging?  I have you site linked from my
site and was wondering how I could get a link on your page.  My page is
called The Nursing Files.  I am a nursing student.
http://www.bayou.com/~conan

Thank you,

Kevin from Louisiana

Subject: Re: Website

Hi Kevin,

>What is your policy on link exchanging?  

We try to link to only a few sites, most UK or breast cancer-specific. We do also 
link to a few of the big US cancer sites e.g. NCI and Oncolink. We will link to you 
via our Feedback page, where I will put your e-mail when I next up-date this 
section, prob 1st Nov.

>http://www.bayou.com/~conan

I'll have a look.

Enjoy the Big Easy (if that's where you are), cher. For some reason it is high on 
every British person's list of places to visit. Been there once in, oh, 1974 I think.

best wishes,

Marie

*****************************************************************

Date: Sun, 5 Oct 1997 05:05:34 -0400 (EDT)
From: DVME
To: UKBCA@somewhere.org.uk
Subject: Comments

Good to see Breakthrough has a web site. I browsed and thought one thing that
might be useful would be a list of all the local breakthrough groups in the
UK, so that people can see where to join/contact a local group. Maybe it's
there, but I couldn't see it. Best of luck.

Subject: Re: Comments

Hello,

Thanks for your e-mail.

>Good to see Breakthrough has a web site. I browsed and thought one thing that
>might be useful would be a list of all the local breakthrough groups in the
>UK, so that people can see where to join/contact a local group. Maybe it's
>there, but I couldn't see it. Best of luck.

We put on all the information supplied to us by BREAKTHROUGH. I will mention your 
e-mail when i next speak to the press officer.

Regards,

Marie

*****************************************************************

Date: Fri, 03 Oct 1997 14:38:10 -0700
From: heidi
Subject: another breast cancer cause (Leading Ladies)

Thanks to everyone who wrote to me and linked to SHN's breast cancer
petition at http://breastcare.shn.net.  The results have been great, and
the petition is still going strong.

I am involved with one more incredible breast care site, called Leading
Ladies.  'Leading Ladies' is a collection of female artists who've come
together to raise money for breast cancer awareness. On the site
you can talk about breast health in an on line forum, send a
postcard to remind a friend or relative about breast care, and
get a 'personal action checklist' of things you and your family
can do right now toward setting up a complete breast health routine.

The site is from Women's Wire and Reader's Digest... and can be experienced
at http://www.leadingladies.com

I would appreciate a link to Leading Ladies, if you have room to spare on
your sites.  This time, the cause isn't only US-oriented either... its a
worldwide affair.

Thanks -- let me know if you have any questions about either SHN's or
Leading Ladies' effort.

Heidi Paul


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