Please send any e-mail you would like to appear to UKBCA@somewhere.org.uk. Unless you are clearly writing on behalf of an organisation, your e-mail address will not appear on the site. Any e-mail from other visitors responding to your message with information will be forwarded to you.

Delivered-To: UKBCA@somewhere.org.uk
Date: Mon, 23 Mar 1998 23:32:12 +0000
From: "oasis.youth" 
Subject: Leiomyosarcoma

I am a nurse, and I would appreciate it if you could send me some
information on leiomyosarcoma, its presentation, treatment currently
available, and its likely outlook.  I take this opportunity to thank you
in advance for any information you may be able to supply me with.

Kate
SCOTLAND

To: oasis.youth
Subject: Re: Leiomyosarcoma
Hello Kate,

You have contacted the Breast Cancer Awareness Internet site. 

>information on leiomyosarcoma

I had to look this up on my medical dictionary and it is not in the index 
of any of my breast cancer books. I suggest you contact BACUP via their 
website:

http://www.cancerbacup.org.uk/

Regards, 

Marie

*****************************************************************
Delivered-To: UKBCA@somewhere.org.uk
Date: Mon, 23 Mar 1998 12:20:53 -0800

Dear Marie, Making contact to say that I'm Anne and have greatly
benefitted from courses at the Bristol Cancer help Centre using holistic
approaches. Am willing to share my experience. Also not having any luck
in accessing your website using http://www.easynet.co.uk/aware is this
correct address. Look forward to hearing from you. Kind regards Anne.

Subject: Re: Bristol

Hello Anne,

> Making contact to say that I'm Anne and have greatly
>benefitted from courses at the Bristol Cancer help Centre using holistic
>approaches. Am willing to share my experience.

I would be happy to put on e-mail from you in our Feedback section. 

> Also not having any luck
>in accessing your website using http://www.easynet.co.uk/aware is this
>correct address. 

No, the final "/" is missing, it was printed wrong in the Bristol mag. Try

http://www.easynet.co.uk/aware/

Look forward to hearing from you. 

Best wishes,

Marie

*****************************************************************
Delivered-To: UKBCA@somewhere.org.uk
From: 10052844@mail
Date: Wed, 11 Mar 1998 20:06:04 GMT
Subject: Breast cancer

        I am a student and as part of 
my assessment I am doing a presentation on Breast cancer and how to 
do regular checks.  I have seen many adverts for a pack that shows 
how to examine yourself and includes a video.  These are all from 
America and I was wondering if there is anywhere that has packs like 
that here in the U.K.   
        I am performing this presentation in front of 
a large group of young females and I feel it is my duty to collect a 
large amount of information that is correct and so I am seeking 
advice. If you have any contact numbers that may be useful for me or 
any information yourself I would be grateful.  Thankyou for your time
        Your faithfully,
                Rachel 

To: 10047511@mail
Subject: Re: Breast cancer

Dear Rachel,

The breast self-examination diagrams on our site come from an Estee Lauder 
press pack for Breast Cancer Awareness month. You are welcome to print 
these out. 

I have  not seen any videos on breast self-examination. You might be able to get 
additional material from 

Breast Cancer Care
Kiln House
210 New Kings Road
LONDON SW6 4NZ
Helpline (0171) 384 2344, Nationwide Freeline 0500 245 345

support@bccare.demon.co.uk

or 

Breast Care Campaign
Blythe Hall
100 Blythe Road
London W14 0HB
Tel: 0171 371 1510 
Fax: 0171 371 4598

I do not have statistics to hand but I believe it is the case that while most women 
find their own breast lumps, this does not occur during a regularly performed breast 
self-examination. Perhaps you should look into this. It is also important to remember 
that early detection does not equal prevention.

There are a number of other cancer support and information organisations listed on 
our Cancer Contact pages to which you may wish to refer, including BACUP, which 
has its own web site to which we are linked.

Regards, 

Marie Nally

http://www.easynet.co.uk/aware/

*****************************************************************
Delivered-To: UKBCA@somewhere.org.uk
Date: Thu, 05 Mar 1998 21:16:43 +0500
From: Saadia 

Dear Madam

I am doing a research on Cancer awareness in LDCs.I would be highly
obliged if you could guide me as to where i would be able to find
information on this subject.
Waiting in anticipation

Saadia

Hello Saadia,

What is an LDC?

Marie

Date: Fri, 06 Mar 1998 08:43:54 +0500
From: Saadia 
Subject: Re: Urgent

LDCs are lower developed countries

saadia

Subject: Re: Urgent

Dear Saadia,

>I am doing a research on Cancer awareness in LDCs.I would be highly
>obliged if you could guide me as to where i would be able to find
>information on this subject.

You have written to the UK Breast Cancer Awareness web site. We are not able to 
supply information for countries other than the UK. I suggest you have a look at 
the USA's National Breast Cancer Coalition website and contact them.

http://www.natlbcc.org/world/about.htm

The NBBC ran the 1st International Breast Cancer Advocacy Conference last year 
and women attended from Africa, Latin America, the Asian sub-continent etc. There 
is a list of attendees you could contact and a second conference is being planned for 
1999 (for which funding is available).

best wishes,

Marie

*****************************************************************
Delivered-To: UKBCA@somewhere.org.uk
Date: Fri, 20 Feb 1998 22:28:33 +1100
From: Ronda 
Subject: Breast cancer in young women

My 28-year-old daughter has just been diagnosed with breast cancer here
in Australia.  We are becoming very confused by opposing information
coming from the medical profession and alternative health sources.  Do
you have any information that can be e-mailed, faxed, or sent via snail mail 
which would help us understand the decisions my daughter is being asked 
to make?

She has not yet had any children and is very frightened that, if she
survives the cancer, she will remain infertile as a result of the chemo
and radiotherapy treatments she is being told she must have.  The only
help she has so far been offered with the fertility problem is an
operation to remove and store part of her ovaries.  This is apparently
still experimental.

We would be most grateful for any help you could offer as there doesn't
seem to be any organisation in Australia that offers information on both
the medical model and the alternative point of view.  We would
particularly be interested in hearing if these two models have worked
successfully together.

Marie Nally wrote:
> 
> Dear Ronda,
> 
> You have e-mailed the UK Breast Cancer Awareness Internet Site. We are not
> able to give any medical advice. Obviously, there will not be one
> definitive source of information that will help your daughter in making the
> decisions with which she is faced.
> 
> You may already be aware of the breast cancer e-mail discussion group. If
> not, details below. This is a good forum for asking questions such as yours
> and finding others with similar experience or able to provide specific
> information.
> 
> Best wishes to you and your daughter,
> 
> Marie (details follow)
> 
> To subscribe to BREAST-CANCER send an e-mail message to
> Listserv@morgan.ucs.mun.ca
> Leave the subject line blank, and in the body of the message put SUBSCRIBE
> BREAST-CANCER your_name.
> 
> To send a message to the other people subscribed to this mailing list, send
> e-mail to
> BREAST-CANCER@morgan.ucs.mun.ca
> 
> To leave the list, simply send a SIGNOFF BREAST-CANCER command to
> Listserv@morgan.ucs.mun.ca.
> 
> You can browse the archives at
> 
> http://cure.medinfo.org/lists/cancer/bc_search_sl.html

Many thanks for your prompt reply.

*****************************************************************
Delivered-To: UKBCA@somewhere.org.uk
Date: Mon, 23 Feb 1998 21:53:08 -0500
From: Patty 
Organization: Lynch Consulting
Subject: Request for Link to "Beyond Miracles: Living With Cancer" Site

Request for Link to "Beyond Miracles: Living With Cancer" Site

This is a follow-up request -- sorry for the intrusion!  If you 
already created a link to "Beyond Miracles: Living With Cancer",  
please let us know. Thank you.
------------------------------------------------------------------------
I am writing you to ask if you would place a link on your Web site to 
"Beyond Miracles: Living With Cancer" so that your visitors can become 
aware of this valuable cancer survivor resource. To assist you, we have 
provided graphics and instructions for linking to livingwithcancer.com 
on a How-2-Link page at http://livingwithcancer.com/how2link.htm.

For the 8 million Americans with cancer, those who survive are 
confronted with mastering a new skill: living with uncertainty.

Behavioral medicine expert Stephen P. Hersh, M.D., director of the 
Medical Illness Counseling Center in Bethesda, Maryland, discusses the 
biomedical and psychological needs that cancer patients may not find 
addressed elsewhere in his book about the whole experience of cancer, 
"Beyond Miracles: Living With Cancer."

In the book, Dr. Hersh offers checklists and suggestions for 
survivorship. Appendices examine in detail such topics as pain 
medication and nontraditional treatments, and list cancer centers, 
books and other valuable resources.

Ellen Stovall, Executive Director of the National Coalition for Cancer
Survivorship, praises "Beyond Miracles: Living With Cancer" as "a book 
every cancer patient should read. Written by a caring doctor, it offers 
honest guidance with rare understanding of a cancer patient's needs. 
Turn to it again and again to build realistic optimism, to learn to 
live each day to the fullest."

You may find out more about Dr. Hersh and his latest book at his new 
Web site (http://livingwithcancer.com), which also provides:

--  valuable links to Internet cancer resources selected by Dr. Hersh
--  book reviews and comments from cancer survivors and caregivers
--  a special article from "The Washington Post" HEALTH column 
    addressing uncertainty after battling cancer
--  Dr. Hersh's viewpoint on alternative medicine as stated in 
    "Physician's Weekly"
--  audio clips of interviews with Dr. Hersh
--  the table of contents for the book
--  a free survivor checklist from the book appendices
--  a form to contact Dr. Hersh by email
--  a secured form to buy the book online at a discounted price

The new "Living With Cancer" Web site (http://livingwithcancer.com) 
will continue to grow to provide a valuable online resource for cancer 
survivors, their caregivers and their families. Please visit the Web 
site often and order your discounted book today.

For help with linking to livingwithcancer.com visit the How-2-Link page 
at http://livingwithcancer.com/how2link.htm or contact Steffanie Lynch 
at info@drwebby.com.

From: m.nally@dial.pipex.com (Marie Nally)
Subject: Re: Request for Link to "Beyond Miracles: Living With Cancer" Site fwd

I will include your e-mail in our Feedback page when it is next up-dated. We like 
to keep our links page brief and to include primarily links of interest to those 
affected by breast cancer in the UK.

Regards,

Marie

*****************************************************************
Delivered-To: UKBCA@somewhere.org.uk
Date: Mon, 02 Feb 1998 11:51:10 -0500
From: Peter Waite 
Subject: Breast Cancer Link Suggestion
To: UKBCA@somewhere.org.uk
Organization: The HealthBook Store

I really like your website on breast cancer.  Thank you for your online
efforts.  I'm writing to suggest a link to a new resource on the
internet called the Breast Cancer Book Store.  I set it up to make such
books more accessible for women with breast cancer.  Please consider
adding a link to us.  Thanks!

Peter Waite, Webmaster
Breast Cancer Book Store
http://members.aol.com/healthbook/breastcancer/

*****************************************************************

From: 
To: 
Subject: Making contact
Date: Thu, 15 Jan 1998 16:04:52 -0000
Dear Marie,

My name is Stella and I have read about your web site in
"Centrepiece".  I have tried to get into the web site but it is not
allowing me to do so.  I will try again when my partner comes home - she
knows more about these things than I do!

I live in Wrington which is a village about 15 miles south of Bristol and I
have had cancer of the breast (1995) and a brain tumour (1996).  The two
are unconnected and I was just unlucky apparently!

I have been treated on both occasions at Frenchay Hospital for the ops and
the Bristol Oncology Centre for the radiotherapy.

After the brain tumour op. I was told that it was a Grade 3 asterocytoma,
not the anticipated Grade 2, so the prognosis is much worse.

So I went to the Cancer Help Centre between my op. and the radiotherapy in
the autumn of 1996 and I havn't looked back.  We both  went to the
Introductory Day and to a Follow up day a week later.  We were incredibly
impressed with their approach - the content, style, atmosphere etc.  Mind
you we had Rosy Daniels and she is so very good.

I was especially taken with healing which I had not had before, and ever
since then I have maintained a more or less regular weekly attendance for
healing.  I also have massage once a week to help with the lymphodoema in
my arm from the breast cancer - well that's how it started but it's a whole
body massage.  I have counselling fortnightly, but I was doing that before
I knew I had cancer.

I have taken Essiac for most of last year but I'm having a break from it,
and I take Iscador via a referral to the Homeopathic hospital in Bristol. 
I would not have known about these things if I hadn't heard about them from
the Centre.

I try to adhere to the general principles of the diet and I have made some
modifications, but I am not a vegan, or vegetarian.  I try to eat organic
food, less meat, less hydrogenated fat.  I cannot cope with milk
substitutes so I have organic milk on cereal etc.

The Centre has made a real difference to how I feel about myself - I know
that there is always someone to ask about things and I find the atmosphere
of the building itself.very calming.

The only thing I don't think they do well enough is to explain to people
how the place works - I know most people come from a distance but sorting
that out initially was quite difficult.  I also do not think they give
users enough chance to give feedback - that is real feedback.

I am looking forward to getting into your web site.

Best wishes,

Stella

From: m.nally@dial.pipex.com (Marie Nally)
Subject: Re: Making contact

Hi Stella,

Thanksfor your e-mail. The URL in Centrepiece missed off the final /, 
you need to try

http://www.easynet.co.uk/aware/

We have a Feedback section where I can put your e-mail. I have had a few 
e-mails from other women who also couldn't get through with the incomplete 
URL, but yours is the first which talks about your experience at Bristol. 
If we get several, we may do a feature but the site is run by myself and one 
other woman and at the moment I am having chemo so I'm not up to much.

best wishes,

Marie

*****************************************************************

From: Chris 
To: "'UKBCA@somewhere.org.uk'" 
Subject: Website
Date: Fri, 19 Dec 1997 16:30:08 
Dear Ms Nally

I have found your email address in the Bristol Cancer Help Centre
publication "Centrepiece".  I am interested in accessing your website
pages but have been denied access, can you let me have the correct
address.

I have been a breast cancer sufferer and found this a turning point in
my life which has resulted in my finding new direction, which I believe
had been lacking before my cancer experience.  I am therefore interested
in your requirement for testimonies, could you let me have more details,
I have become so convinced and committed by the holistic approach to
healthcare that I am now studying to become a complementary therapist
myself.

Best wishes

Chris 

From: m.nally@dial.pipex.com (Marie Nally)
Subject: Re: Website 

Hello Chris,

>I have found your email address in the Bristol Cancer Help Centre
>publication "Centrepiece".  I am interested in accessing your website
>pages but have been denied access, can you let me have the correct
>address.

http://www.easynet.co.uk/aware/

>I have been a breast cancer sufferer and found this a turning point in
>my life which has resulted in my finding new direction, which I believe
>had been lacking before my cancer experience.  I am therefore interested
>in your requirement for testimonies, could you let me have more details,
>I have become so convinced and committed by the holistic approach to
>healthcare that I am now studying to become a complementary therapist
>myself.

Rosy Daniel asked me if I would be willing to put contributions from those 
affected by breast cancer on the web site who felt they had benefitted from 
the Bristol Cancer Help Centre and I agreed. You are the first to contact me. 
You are welcome to write of your experience of breast cancer and at Bristol. 
We would include this on the site either as a separate page (linked to from our 
Diary and Bristol Pages) or within our Feedback section.

Best wishes,

Marie

*****************************************************************

From: "Triceratops" 
To: 
Subject: Please Help
Date: Sat, 6 Dec 1997

My mother is suffering from a breast cancer in a rather advanced stage. The
cancer has left its capsula and now there are metastases in a ribbone under
the right breast, also metastases in a lymphsystem under the shoulder. The
surgeon says that it does not make any sense to cut the cancer away in that
stage; the only way is either a hormon-therapy or a chemo-therapy (depending
on the histological results). They say that there is no chance for a
complete healing.
My mother is in a very good condition, generally, the inner organs are not
infiltrated, she is very optimistic, and willing to beat the disease.
Do you know, if there is any other, more successful way to fight against
this metastased breast cancer? Is there a possibility for a (complete)
regeneration? If you have any ideas, please help us.

Georg 

To: "Triceratops" 

Hello Georg,

>My mother is suffering from a breast cancer in a rather advanced stage. 

I am sorry to hear of your mother's diagnosis.

I am not able to give medical advice. For more detailed medical information, you 
might want to look at one of the sites on our Hotlist, such as the National Cancer 
Institute site. The breast cancer e-mail discussion group might also be useful for 
discussing treatments with others affected by breast cancer, though I believe the 
group is US-dominated.

>surgeon says that it does not make any sense to cut the cancer away in that
>stage; the only way is either a hormon-therapy or a chemo-therapy (depending
>on the histological results). They say that there is no chance for a
>complete healing.

All I can tell you is that I am a woman with advanced breast cancer and I have been 
seen/treated by a number of oncologists in the US/UK who have said the same as 
your mother's surgeon. But each woman's cancer is different and I know women who 
have survived long beyond their prognosis. I think it is important to be hopeful and 
positive and to have psycho-social support, such as counselling or a support group.

>Do you know, if there is any other, more successful way to fight against
>this metastased breast cancer? Is there a possibility for a (complete)
>regeneration? If you have any ideas, please help us.

There are accounts of "miracle cures" in books and on the Internet, but in terms of 
conventional medicine, advanced breast cancer is considered "incurable." This does not 
mean a woman cannot affect her length of survival and her quality of life. It is up to her 
how much she wishes to inform herself about the details of her disease and the 
treatments available. 

I am sorry not to be able to give you more concrete information. If you think I might be 
able to help further, please get in touch again (though I will be away for most of Dec).

best wishes,

Marie
http://www.easynet.co.uk/aware/

*****************************************************************