feedback
This page contains Feedback we've received from October 1999 to May 2000. Earlier Feedback pages cover the periods:

Be warned - these pages are each rather long and can take some time to download and read.

Please send any e-mail you would like to appear to UKBCA@somewhere.org.uk. Unless you are clearly writing on behalf of an organisation, your e-mail address will not appear on the site. Any e-mail from other visitors responding to your message with information will be forwarded to you.

Dear * 

Thank you for your email to the UK Breast Cancer Awareness Site, I must 
start by pointing out that I run the site voluntarily as a UK based 
listing and I do not have any medical training so generally I'm unable to 
help with questions of this kind. 

However as you suggest there has been a lot of email traffic regarding 
this issue but as yet there seems to be no definitive answers to your 
questions. What I can tell you is that Breast Cancer Care 
(www.breastcancercare.org.uk - bcc@breastcancercare.org.uk) and other 
Cancer organisations are stressing that there is actually no scientific 
research that supports these claims.

The only specific web based information I have found (but I must stress I 
have NOT done a lot of research) is on the Women's Environmental Network 
website (http://www.gn.apc.org/wen, email wenuk@gn.apc.org) - again this 
is not based on published research but they do have a page which talks 
about the issue and also lists alternatives to common anti-perspirants. 
The page is at: http://www.gn.apc.org/wen/para.htm

I'm sorry not to be able to give you more advice, but the general 
consensus seems to be that there is no scientific proof for the claims. 
The following page has been suggested to me as a good source of 
information as to why the claims do not stand up to scrutiny and may also 
be of interest: http://www.pathguy.com/antipers.htm


Best wishes

Nina Pope


*****************************************************************
Hi

We are launching a medical encyclopedia: www.Medic-Planet.com .

We'd like to link to your site  - see the link at the top of the article:
cancers

Could you please link back to us?

BBC North will be starting a six week series on Look North Tonight (BBC ONE)
about people whose lives have changed because of cancer.

For your information, attached is a press release outlining the series.

For further details please contact :

Jo-Anna Parkinson
BBC Manchester Press Office
0161 244 4899

jo-anna.parkinson@bbc.co.uk

Many thanks.

	Can being postive about cancer actually affect how long you live?
Patients, doctors and nurses give their opinions in a new series of
reports on BBC Look North on Friday nights. Producer and Health
Correspondent Anne Kostalas writes about the making of the series
called The C Word.

	Making a film about cancer sounds depressing doesn't it?
Colleagues have asked me 'Doesn't it get you down' Perhaps I've been
lucky and met some unusual people - but I don't think so. I think
there are thousands of people out there who rise to the challenge and
keep positive while living with cancer.

	We've actually had lots of laughs - I've been fishing near
Carlisle, hiking over Carlton Bank in North Yorkshire and pulling up
cabbages on an allotment in Easington Colliery. Along the way I've met
patients with terminal cancer,  others undergoing chemotherapy and
some lucky enough to be in remission.

	Colin Richardson, who's 41, didn't exactly have the reaction youíd
expect when he was diagnosed with terminal bowel cancer. He and his
wife went to the States and drove Route 66. We caught up with him
fishing at Cocklakes outside Carlisle (he actually caught one on
film). He said: 'I've always had a crazy ambition to drive Route 66.
It never would have been realised if I hadnít been diagnosed with
cancer. The opportunity came up to do it so my wife and I took off and
spent three weeks in the States. It was fantastic'

	Cancer can often inspire people to do something they've always
fancied. They either feel they've got nothing to lose now or that
theyíve been given a second lease of life. Like Bryan Elliott, 63, 
from Barnard Castle- who bought himself a motorbike when he beat
prostate cancer. He now travels across Europe on it. We filmed him on
the roads around High Force in Teesdale.

	'I wouldn't have thought about it before but you sit down and
think thereís more to life than just driving to work and driving home
again. When I told a friend of mine I'd bought a motorbike he thought
I'd flipped,' said Bryan.

	Cancer can change people - we met up with Margaret Watson from
Middlesbrough walking high up on Carlton Bank in North Yorkshire as
hang gliders hovered above us. She said:

	'My husband thinks I've changed - I think I've just become more
assertive - life's too short - I haven't got time to be messing
about.'

	Margaret's cancer hasn't returned since she had a mastectomy for
breast cancer three years ago. At the time she wrote lists of ideas
for her funeral. Now she's put them away at the back of a drawer.

	Can  being positive affect your cancer - make a difference to your
prognosis and even make the difference between life and death?

	John Monaghan,  a surgeon who specialises in treating
gynaecological cancers at the regional centre in Gateshead, said: 'We
have no solid scientific data - however my gut reaction  is that the
positive patient tends to do better. It's not a very scientific
approach but after 27 years in cancer care I have a very solid feeling
about it.'

	For many patients just trying to keep life as normal as possible
is the answer. Joanne Forbes - a teacher at Red House School in Norton
on Teesside found she had ovarian cancer when she was seven months
pregnant with her son James.

	During the same operation to deliver her baby by Caesarian 
surgeon John Monaghan removed the tumour. Joanne's surgery coincided
with her maternity leave. She's now back at work and is determined
that her cancer will only take up a tiny part of her busy life.

	'I'm a normal person you know - I go to the supermarket just like
everyone else. Iíve always felt fine - the only thing that makes me
feel ill is the chemotherapy - but I know itís doing me good.'

	John Church from Catterick was told he only had months to live
after he was diagnosed with mesothelioma - cancer related to exposure
to asbestos. He changed doctors. 'Don't give up on me doc,' he told
his new consultant. 'We don't give up on anyone', was the reply.

	Eighteen months and nine doses of chemotherapy later  - he's in
remission. The BBC filmed him training for a sponsored walk he's doing
to raise money for the Holistic Cancer Care Appeal at South Cleveland
Hospital in Middlesbrough.

	Anne Kostalas is Health Correspondent with BBC North. The C Word -
a series of six short films on being positive about cancer - can be
seen on Look North on Friday evenings at 6.30pm on BBC1. It will also
be broadcast on BBC local radio. The series starts on Friday June 2
and runs for six weeks.

 *****************************************************************
 
 Shari - thanks for your message to the UK Breast Cancer Awareness Site
  - I will post it up on our feedback page.

best wishes

Nina Pope

>Dear Ms. Pope,
>	I'm a high school junior in Plainview, New York, and am coordinating a
>study in conjunction with the Department of Preventive Medicine at the
>University Hospital at Stony Brook. We are studying the Psychosociology
>of Breast Cancer.
>	We are conducting an online survey entitled "Coping With Breast
>Cancer," and are trying to reach as large and as diverse a population of
>breast cancer survivors as possible.  
>	Our website is: http://www.uhmc.sunysb.edu/prevmed/bcsurvey/
>	Any publicity that you could give to this site would be very helpful
>(i.e. e-mail lists, membership newsletters/fliers, announcement at
>support group meetings, linkage to website, etc.). Below is a copy of
>our site advertisement:
>
>Calling all Breast Cancer Survivors
>
>Researchers from the
>University at Stony Brook
>Want to learn about your experiences with
>Breast Cancer . . .
>
>Visit our website to complete our survey
>Our website is:
>http://www.uhmc.sunysb.edu/prevmed/bcsurvey/
>
>	Thanks in advance for your time and interest.
>	Sincerely,
>	Shari Morris




*****************************************************************
Dear Nina

Please find attached information regarding Your Life In Your Hands:
Understanding, Preventing and Overcoming Breast Cancer, published 8th June
2000.  

 <> 

I believe that this book is unlike any other written on the subject of
breast cancer.  It is aimed at equipping women with a clear understanding of
what causes the disease and its recurrence, and informs them how best to
direct their efforts in either preventing or treating cancer by minimizing
their own personal risk. It is also the personal journey of one of the UK's
pre-eminent scientists, who not only overcame her own terminal cancer but
has achieved equal success with 65 other sufferers. Professor Jane Plant's
message - that breast cancer can be prevented and effectively treated by
simply diet and lifestyle modification - will change the way scientists and
doctors think about this disease.

I hope you will take the time to read the attached additional information,
and will consider promoting Professor Plant's message on your website.  I
would, of course, be more than happy to set up a reciprocal link between
your site and the entry for the book at www.virginbooks.com.  My ultimate
aim is to create a special sub-site within www.virginbooks.com featuring
extensive content from Your Life In Your Hands and extensive information on
the organisations who are helping to support it.

If you would like to receive a review copy or any additional information
regarding the project please feel free to reach me at the contact numbers
listed below.

Many thanks for your time, and I look forward to hearing from you.


Amy Nelson-Bennett
Marketing Manager
Virgin Publishing
T: 020 7386 3326
F: 020 7386 3365
E: anelsonbennett@virgin-pub.co.uk


*****************************************************************

	I would like to invite you to visit our website. We are currently
the only on-line forum and resource site for women who are at high
risk of breast and ovarian cancer.  I found out that I carry the BRCA2
genetic mutation after being diagnosed with breast cancer at a young
age (33). Concurrent with this discovery I became aware of the need
for a support and information site for women who carried a BRCA
mutation, or who had a strong family history of breast or ovarian
cancer.  This especially seemed to apply to women who were at high
risk but didn't have a cancer diagnosis, since many of these women
felt uncomfortable posting at the many cancer support sites.  To
fulfill this need I created FORCE:  Facing Our Risk of Cancer
Empowered.  Since then we have grown, and we've recently expanded and
upgraded our site.  Our goals are to provide support for women at high
risk for breast and ovarian cancer, provide support for those families
with increased risk of these cancers, and help women find resources to
determine if they are at high risk for breast and ovarian cancer.  Our
web address is:

	www.facingourrisk.org

	I encourage you to visit the site (or revisit it if you haven't
seen it recently) and look at the list of well respected organizations
that link to us on our reciprocal links page.  I hope you will add us
to your resource page.  I look forward to your feedback on our
website. Sincerely, Sue Friedman

**********************************************************
FORCE: Facing Our Risk of Cancer Empowered
www.facingourrisk.org
Joining FORCEs against cancer.
**********************************************************

Hi!

We now have our own website:

 www.scottishbreastcancercampaign.org

Can you please now change your link to us and remove the page that you
have kindly provided for us up untill now.

Do you mind if we place a link back to your site?

If you have any questions or comments about our site (if you think we
are missing anything that we should have on it)  please let us know.

Dario Melaragni (Director and Webmaster)

*****************************************************************

>dear nina
>
>i found your details on your site and was wondering if i could pick your 
>brains
>[if you're not doing the site anymore following marie's death, please forgive
>me]
>
>we're publishing a book called Life's Delicate Balance: A Guide to the Causes
>and Prevention of Breast Cancer by  Dr Janette D. Sherman, based in the US
>
>the book won't come out here until april, but i want to start getting 
>ready for
>it now - it's not the usual sort of book we publish, but i'm promoting it 
>as a
>publicity title as it's far too important not to - if that makes sense
>
>janette's book is going to be fairly controversial in that makes urgently 
>clear
>that winning the war on breast cancer is not going to be won by docters,
>scientists, or pharmaceutical corporations, or by the thousands employed in
>governmental agencies and universities both here and abroad - it'll be won by
>people who understand the connection between the loss of personal health 
>and the
>unchecked boundaries of worldwide pollution - and understand too the 
>avarice of
>pharmo companies...
>
>janette's is a hugely respected toxicologist - one who's departed from the
>conventional medical thinking on breast cancer and its prevention - and this
>book's the outcome of that
>
>given the fact that she's a bit of a maverick, i wondered if you could 
>give me
>some guidance as to who i could contact in the press that would be open to
>non-conformative thinking on breast cancer, thinking that challenges current
>medical thinking - indeed, i also want to send you a copy as soon as we 
>have one
>for review on your site, if i may
>
>any help you can give would be greatly appreciated!
>
>cheers,
>
>áine duffy
>routledge

*****************************************************************

						


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